Some of us make plans for the future, some simply let each day define and shape the next. I don't think any of us anticipate every potential scenario of change, transformation, or trauma. Even the most morbid or realistic of us cannot predict or prepare for the reality of tomorrow.

That's what Maria Johnson realized as she received the diagnosis of a rare disease that was quickly denying her the ability to see. She had been concerned about her eyesight, went for dozens of tests as she realized it was getting worse. It wasn't until 7 months after she went for her first doctor visit, and only one month prior to completely losing her vision and becoming legally blind, that she finally received her diagnosis. And there was nothing to be done. No cure. No treatment.